MAC treatment round 3, visit 3 NJH

on May 22, 2019

Hey guys. Yesterday was visit 3 of this round of MAC treatment at NJH. It was a super long day, but we got some good news. Not quite the news we were most hoping for yet, but still good overall. Hoping for that Chicken Butt shirt really soon though! (if you’re wondering what the heck I’m talking about see https://www.youtube.com/watch?v=mlspc… ) Thanks for watching this little snapshot into this world! Music: Gabrielle Aplin’s HOME, cover by Jasmine Thompson and Forever by Till Death  

MAC is back…

on Mar 19, 2017

Ok, here’s the deal: I got some tough news a number of weeks ago about MAC potentially being in my life again. I made some choices around that including not putting my energy into that being true because, well, because I felt there was good reason not to. I made the choice to pour myself into the miraculous possibilities of my body and world instead. Since then there have been a few sobering convos and meetings with my docs. More tests, some still on going, and more to come. Unfortunately, I found out Thursday, there is further confirmation that the results were not a fluke (which I and my whole team were thinking and rooting for). There are some proposed approaches that are frankly pretty hard to stomach right now. There are many unanswered questions. I am doing my best to address those, explore many different angles, and keep my focus on what works and what is possible. The...