A little breath, some blblblblblblblblbl@%#, some space, and of course fur baby snuggles get me through… Until tomorrow anyway ;)~
A little breath, some blblblblblblblblbl@%#, some space, and of course fur baby snuggles get me through… Until tomorrow anyway ;)~
Ok, here’s the deal: I got some tough news a number of weeks ago about MAC potentially being in my life again. I made some choices around that including not putting my energy into that being true because, well, because I felt there was good reason not to. I made the choice to pour myself into the miraculous possibilities of my body and world instead. Since then there have been a few sobering convos and meetings with my docs. More tests, some still on going, and more to come. Unfortunately, I found out Thursday, there is further confirmation that the results were not a fluke (which I and my whole team were thinking and rooting for). There are some proposed approaches that are frankly pretty hard to stomach right now. There are many unanswered questions. I am doing my best to address those, explore many different angles, and keep my focus on what works and what is possible. The...
Hey All, So Counsyl decided they weren’t quite done with me after our time together in March and asked me about the possibility of doing an interview for their blog which would be launched in May. Why May you ask? Because May is Cystic Fibrosis Awareness month of course! I said yes. Here’s he link and more of my two cents… Bringing Cystic Fibrosis to Life: A Conversation with Kori Tolbert
Hi All, The genetic counseling company, Counsyl, invited me to come speak about Cystic Fibrosis at their annual conference in March. Unfortunately, because of some body challenges, I could not make the cross country trip. So…we figured out a solution to bring me there via Skype. Below is the link to the recorded talk that UCO media put together. They added in a soundtrack that I’m not quite sure how I feel about yet LOL. But this edited version is what I’m allowed to share. It is minus the intro, which was the showing of the film “Three Lives” by UCO media (see previous post to see the film) and minus the question and answer section in order to respect the privacy of those asking the questions. The part you can see in the video is basically, what those in the audience saw during the talk portion. But for the full effect picture this in a dark room on...