Looking Back… at a Year of MAC.

on Jan 1, 2018

Exactly one year ago today I stopped my second round, and what I was hoping to be my final round, of MAC treatment. Unbelievably, five days later, I began culturing MAC again. I have spent the last year of my life trying to figure out what to do about this, and all the layers of this that have come since that first re-culture. This has meant a year filled with tears, learning how not to jump to tears, perspective, humility, investigation, and a trip half way across the country for the opinion of the current experts in the nation, navigating my way to be able (and almost not be able) to do that.  Upon arrival there it also ended up meaning an unplanned extended stay there.  My time in Denver, and all that lead up to it, was challenging, beautiful, hope filled, hard, and life giving, a smorgishborg of emotions. I had hoped for some resolution in terms of what to do about MAC more...