Below is the link to my clinic update from month 9 of my MAC treatment dance.
I’m also excited to share some news about a plan to get this bod to a place where it can try Trikafta! Woo friggin hoo!
We’re on our way!
Also, I haven’t been writing as much on here lately. I’ve mostly been using the site for updates as I move through this MAC treatment right now. Getting through that and doing what we need to do to land here in Denver have been the priorities.
That said, I do miss my written shares from the heart. I feel their call…. and it’s my intention to share more of the written pieces that emerge as well soon.
With big, wide open Love,
Breathe by Matt Scales (also sung by Tess, Josh, and Rose, all of whom, including Matt have lived with CF)
Thank you for this beautiful piece. <3
Here is the link to the youtube video of this song.)