From ROC back to Denver….Here We Go!!

on Aug 9, 2019

Well, all good things must come to an end, and so it is for our trip back to Upstate NY. The share is a little late.  It took me some time to be able to get to it and finish it, but we hope you enjoy coming along for our adventure back. Love and gratitude, Team Tolberty Music: Chris and Thomas “Broken Chair” (one of my very favorites!) Paul Simon “Father Daughter” and OPEN HAPPINESS (Coke) Ft. Brendon Urie, Patrick Stump, Travis McCoy, Cee-Lo Green and Janelle Monae

Team R4K Cycle For Life 2019

on Jul 27, 2019

I got to cross the finish line this year! So happy and grateful and honored to be able to make an impact in this way. Sending out a thank you to the organizers and volunteers for this event and a big thank you to the Team R4K riders and all those who donated. I appreciate you all so much. Thank you! Music- “Higher” Flume re-mix by Ta-ku

MAC Clinic Visit 4. The Countdown Begins!

on Jun 28, 2019

No chicken butt shirt, but still reason to celebrate…  

Balance

on Jun 25, 2019

Finding balance in a way that honors my desire to have a big giant “yes” to this life, and still honors what’s possible for this body can be tricky. Here’s a little slice of how I navigate the tightrope. Sometimes I fall off on either side, especially while I am navigating extra treatments and stresses and, gulp, travel. BUT the expression of the beauty of the life that emerges is worth the risk and discernment (that’s the word I was looking for in the video haha). Sometimes what I might be able to say yes to one day is different than what I can say yes to the next, but peace for me means learning to be ok with that. Fighting the body and it’s limitations don’t end up serving me. Fighting the heart and it’s desires don’t serve the me I can be either. So finding that balance, some softness, and trusting in the unfolding Grace I think...

Grace Known

on May 30, 2019

As someone who wants to live full out and also has a seemingly compromised body that I want to do my best to take care of, I sometimes find myself in a place of frustration, disappointment, or regret. I do my best to walk a line of going for it and respecting the needs of this vessel that I live with, but sometimes either I go too far, or maybe Life is just happening, and the body breaks down. This morning, I came up against this familiar place. However, I was able to pause in the midst of it, and find my way back to where It All comes from. A place of gigantic Existence that is nothing less than God (Love/Light…) being expressed in its many forms. This, this Existence, is not changed or diminished by what is physically happening with my body or the emotions, judgements, or fears of my mind. I can bring all of what I feel back to This, let it be seen, held, and absorbed,...

MAC treatment round 3, visit 3 NJH

on May 22, 2019

Hey guys. Yesterday was visit 3 of this round of MAC treatment at NJH. It was a super long day, but we got some good news. Not quite the news we were most hoping for yet, but still good overall. Hoping for that Chicken Butt shirt really soon though! (if you’re wondering what the heck I’m talking about see https://www.youtube.com/watch?v=mlspc… ) Thanks for watching this little snapshot into this world! Music: Gabrielle Aplin’s HOME, cover by Jasmine Thompson and Forever by Till Death  

on May 16, 2019

Hi guys! This one’s for my fellow humans who are living with Cystic Fibrosis. Those who live with CF know that airway clearance is a big deal. It’s something that’s talked about from the moment of we are diagnosed and is an important part of keeping things moving in our lungs. One of my approaches to airway clearance is through Continuum. It gets deeper movement for me than any vest session ever has to be honest and it’s one of my main ways I take care of myself (and the world, but that’s for another video). Continuum sounding has also really helped me improve my FEV1 and with that dreaded air trapping that can be such a part of life with lungs with CF. I’ve also found that I can move and breathe in ways that I had no idea were possible. It’s pretty awesome. I mention in the video that I think it’s better to learn in person, but as we all...

A Day In The Life Navigating The Medical System…

on May 9, 2019

A little breath, some blblblblblblblblbl@%#, some space, and of course fur baby snuggles get me through… Until tomorrow anyway ;)~